Tuesday, January 14, 2014

God goes before



A short version of our day:
MG: mommy stand by me
Me: ok
MG: no, don't look at me
MG: I want some yogurt, help me sit up
Me: ok
MG: no I don't want to sit up, I want some water
MG: I want to watch Barney
Me: ok
MG: no, I want to watch wiggles
Me: which one do you want to watch?
MG: mommy, stop it
;)

So, she's been pretty cranky, poor girl. The first 24 hours are always this way. Tomorrow should be better.

She's still on o2, but will probably be off when she moves around tomorrow. She hasn't slept much all day and seems to be in more pain than she usually is after an expansion. But we have made it through the day with Barney videos and French fries.

Lee headed back to Bham this afternoon. One huge blessing is another veptr mom I met and her little boy from Indiana. He had an expansion right after MG and they are in the room right next to us at RMH....it's so great to know someone since we are alone when we go back to the RMH tomorrow.

I'm very tired, but there is always such a relief when the surgery is over. Hoping for some good sleep tonight for the both of us. Continue to pray for her pain and recovery. Also, for things to go smoothly while we are solo.

A verse from Colossians I read last night. God is in the details and has it all together when things don't really seem all together. Thank you for praying! Will update tomorrow.

"He is before all things, and in him all things hold together." Col 1:17

All done

Mary Graham is all done. Dr. Campbell said she did fine and expansion went well. We are in recovery with her now, she's grumpy and in pain, on a little o2, but doing ok. Please continue to pray for recovery and pain. Thankful another surgery behind us and God's goodness.....thanks for praying!

Monday, January 13, 2014

Today

Monday pre op appointments at CHOP are always long. But things went well. Dr. Campbell was impressed with MG's walking and she actually gave him a high five, usually she doesn't want him to come within 10 feet of her ☺️. He was pleased that the veptr rods are holding her chest and spine stable for now.

We met three other veptr families while waiting, it's so encouraging to meet these families who travel from all over to come here and go through the same things we do.

Mary Graham is first case tomorrow and we have to be there at 6 am. So glad!

The Ronald McDonald house is such a blessing, we had a long day of traveling (and an incident with a very tacky lady on the airplane who apparent thinks a happy, giggly, talkative 2 year old disrupted her entire 1 hour flight, she even tattled to the pilot...but that is a story for another post).

When we arrived we got our room, with a small sitting area outside of it so we can hang out while she sleeps in our room. MG had lots of things to play with, they have a huge playroom and a local church served us dinner. It's very humbling to be served here.

MG went to bed and threw up in the night, but seemed ok today, she's just tired and seems more apprehensive this time. Keeps saying she's ready to go home. Please pray she feels good tomorrow and the surgery is smooth and successful and for her recovery.

We feel your prayers and appreciate all the texts and emails. So thankful for your faithfulness! Will update tomorrow.

About to walk to Bobby's burger palace, we have been wanting to try this supposedly great restaurant each time we have come up here, but it hadn't ever worked out. Looking forward to that, yum!


Sunday, January 12, 2014

Prayer answered already

We are about to board in Birmingham and Lee called to check if we could get a room at Ronald McDonald and we are in!!!

Y'all this rarely happens that we get in the first day. What a blessing! Thanks for praying! 

Saturday, January 11, 2014

This week

Jan 10, 2014 9:25 PM
We leave Sunday to flight up to Philly, pre op appointments on Monday 
and surgery for an expansion of MG's rods on Tuesday.

We appreciate your prayers so much and we don't take for granted

 what a blessing these last several months have been. We thank and praise 
God for her progress and no complications. But as another 
surgery approaches, fears start to creep in about infections and 
complications during and after surgery.
Please pray for these specifically.

And although it seems like "old hat" to do this over and over again. 

It never really gets easier. This trip Lee is going to fly back home tues 
night after the surgery and MG and I will stay the remainder 
of the time and hopefully fly home Thursday. I haven't ever done it solo. 
Please pray that we either get into the Ronald McDonald house or possibly 
the hospital allows us to stay an extra night, and all the logistics that go 
along with travel. And Loftin and Lucy who will be with grandparents. I know
 God will work out the details, He always does.

Thank you for continued prayers! Will update along the way....

Isaiah 40:11
He tends his flock like a shepherd, He gathers the lambs in his arms and 

carries them close to his heart; he gently leads those that have young.

Saturday, December 28, 2013

Plans and the Unexpected


"Today is the greatest day, and I am in it." ~Jacob Damoff


I started this blog post a while back and have been meaning to post it. Well, last night Mary Graham showed us something we were not expecting and it was as if all God had been teaching me came full circle and I knew it was time to post these words I had written.

 She did this....

I
Walking from Jennifer Sheppard on Vimeo.

Then she did THIS!! Lee and I were thrilled to say the least. She has been moving really fast in her walker lately but always been too afraid to let go. Then all of the sudden, she decided she could do it and it was as if God just took away her fear and moved her.


Walking2 from Jennifer Sheppard on Vimeo.

We are so thankful God has given her the ability to move around a little more independently. Just a couple months before turning 3. I really don't have the words for watching her do it for the first time last night. It was a glimpse of God's glory in the midst of this hard journey we have been on with her.

She still is fearful and has fallen a few times, pretty hard, because she doesn't  have good balance and the strength to brace herself. She has walked some today, but still asks for her walker. But we praise God for this unexpected gift and pray for safety and strength for her as she moves around on her own.


God has been showing me so much these last several months. The above quote is from a 15 year old boy, that he hung on a sign in his bedroom, only later that year would face a drowning accident and by the grace and healing of God, in a hopeless situation, would learn to walk, talk and live again...although he would face tremendous challenges for the rest of his life as it was forever changed. The book "Parting the Waters" was given to me and is written by Jacob's mother. And her heart and words shared in the book have affected me so much. Her life and plan for Jacob and her family was shattered the day of his accident. I can't begin to do this book justice, so read it for yourself.....especially if life has not gone the way you planned (which I believe may be all of us).

Recently a friend shared about a difficult path her daughter may be facing. She spoke with a counselor who gave her some good advice and ways to help and pray for her daughter, but then told her, as God tells Job (vs. 42:2) really in the end, whatever this difficult journey or path your daughter may be on, if it is God's plan and His will for her to walk this difficult road, then there is really nothing you can do to thwart that. A wise woman once told me that God is writing His own story for each of our children's lives.

And I believe she is right.

I trust (or I think I do) that God has a plan for Loftin, Lucy and Mary Graham, a good plan...which scares me to death, because, let's face it, sometimes (a lot of the time) God's plan for our children is a hard thing to swallow, to let go of......it's often not what we as parents would choose. Oh, and my kids are only 7, 6 and 2 years old! There is so much more to come.

We don't have control.

I thought so much about this with MG and her disease (one we certainly couldn't control or change). Just last week I picked out her first wheelchair, a bubble gum pink tiny wheelchair. Even though she is moving so well with her walker and beginning to walk, she needs this as another option to help her more towards independence and help her with long distances. There was that mix of pain and joy. God has chosen this path for her and this is where the beauty lies. Deep in my heart, 2 years ago when I was grieving over the loss of who I thought she would be and the reality of her situation, God gently whispered in my heart...."I have great plans for her." Really? Do you God? Because, as Jacob's mom says, I wanted her to grow up healthy and happy and to impress the world and receive the praises of men. But God is doing something greater and His plans will  not even compare to what I had wanted for her....even in a bubble gum pink wheelchair....even in the hardest times....and even in the most joyous times like watching her walk for the first time.

His plan in better.

These last few months, in my mind, I have been brought to a place and wanted to say outloud that I'm simply astounded that Mary Graham has been given to me, to us. That God would chose us to raise her, to love her, to care for her and all her challenges (not at all because he thought we were well equipped-ha! I wish). But because I get a front row seat to see the beauty of God working in the most unexpectly places. Lately I have realized, as Jacob's mother puts it, "God doesn't always allow us to observe what he is doing, sometimes he waits for us to get out of His way." God doesn't need me to accomplish his plan in my children's lives, but I'm so thankful that I get to be a part of it.

Slowly, God is taking me to a place of thankfulness for everything about her, everything about her today. Will there be much harder days ahead? Absolutely. Will we continue to pray for healing? Always. Will I wish things were different? Yes. Will I think we don't deserve this? Daily.

Truthfully though, we really deserve nothing....but Christ gives us everything.

Mary Graham's progress has been amazing lately. I hear the muffled voices of the doctors, the prognosis and all they have to say.....but God's gentle whisper is louder.....

He says, "I have great plans for her."

God has laid so much on my heart....I'm learning to try and not just call for help when I need God, but to realize I have already been rescued....2000 years ago on the cross. What it comes down to is do I trust in the One who died for me? Who loves my kids more than I do?

He does. He is for them. He is for you and me.

So, I will leave you with some pictures of our life the last several months. Blessings to all of you this Christmas! We head back up to Philly for an expansion surgery on January 14th. Not really excited about that, but hoping it will be short and sweet with no complications. Will update more on that in a couple weeks! Thank you for praying! What a mighty God we serve and how faithful and loving is He to have others praying for her and getting to watch His beauty unfold in her life.


The girls and our turkey, Tom


Fun with Cousins


Lucy turned 6 and we celebrated at the American Girl Store

MG's school picture



Selling donuts for our church Christmas outreach


Lee and I got to take a weekend away to the mountains, it had been over three years since we left all the kids :)


Annie, Auburn football player and Ariel



War Eagle! What an incredible season for Auburn!






Wednesday, August 21, 2013

Lots of "firsts" this week....

First day of second grade for Loftin....



First day of Kindergarten for Lucy (and she never looked back, she loved it)



First day of walking together to school....


 Our wonderful new teachers....



And, this is huge....Mary Graham's first time to stand up without holding on to anything....I snapped this picture of her buckling her babydoll in the stroller. She didn't even realize she had let go of her walker to do this. Praise God for this little miracle....


First time dressing up, she loves the princess shoes...