Good days

" And my God will meet all your needs according to the riches of his glory in Christ Jesus." Philippians 4:1

We have been on the move this summer, moved out June 1st, rennovating our house for about 6 weeks, visiting grandparents (actually, living with my parents for about 5 weeks), beach, vbs, sports camp, art camp and on and on. Mary Graham has probably had the best 5 months of her life. She has been healthy and happy and moving more and more on her walker, wheeling all around in her zipzac and gaining strength and she has even gained 3 pounds since March. It feels like she is finally spending more time out of my arms and on her own-this is a huge praise!

All three kiddos are growing so much, we have had some really good days this summer and have enjoyed all the "togetherness" with each other (with a few disputes here and there...I mean they are 7, 5 and 2 years old...MG is definitely showing more signs of being a 2 year old :).

 So even though chaotic, we feel very blessed. And we are so so thankful for no sickness, hostital stays, and very few doctor appointments.

So now, back to Philadelphia this Sunday and MG will have surgery this Tues. August 6th at CHOP for an expansion of her rods. We ask for your prayers for travel, her surgery and no complications with infection. 

Also, we are hoping to meet with Dr. Bonneman, a very well know pediatric neurologist who comes to CHOP once a month for clinic. It is still not finalized yet, but we hope and pray it happens. We scheduled her surgery at this time because he is suppose to be at CHOP. He specializes in some of the rare muscular dystrophies and we feel like it would be so beneficial for him to see MG. And we have heard wonderful things about him. We ask you to pray for that to work out and for all that he has to say as we are still waiting to get a more definitive MD diagnosis and learn more about the disease and progression.

The verse above, from a bible study I've been doing, has been a such good reminder to me this summer and wanting to be in control of my life, my kids and the meeting the needs of my family all by myself. Really believing that He is enough and meets all my needs and the needs of those I love is hard for me. God is helping me close some of these gaps and focus on Christ being enough. Not just enough, but everything.  

Thank you for praying for us and MG and for the progress she has made. I will keep you posted on the surgery and appointments.   

 Here's a little of what we have been up to in pictures and videos of MG, Loftin and Lucy.....








Getting bigger

 

Art camp



Loftin and Lucy dressing up

Swimming

Eating lots of popscicles

Hanging out with cousins

Playing in the sand



Lucy was in a little muscial "Annie" in Tallahassee



Fun with friends at the park

Zoo train

Lake

This first video was at the beginning of the summer and she has gotten even faster since then and the screaming is Loftin and Lucy in the back ground "loving" each other

The second video is at the library, its been fun to take her walker and zipzac out in public and let her practice some independence (and give my arms a break :)

IMG 0754 from Jennifer Sheppard on Vimeo.

Kids riding in driveway from Jennifer Sheppard on Vimeo.