Sunday, November 27, 2016
Saturday, November 19, 2016
She walked some today with her walker and is having some content moments in between pain. So that's some improvement! Scarlett, our puppy is helping make her feel better too :)
Thank you all so much for your prayers, I'll update in the next few days as to how she is doing. I know your prayers and God's grace carried us in supernatural ways. He always does.
Please continue to pray for no complications or infection to arise. Amazing to think she won't have another surgery for a very long time. This was her 18th surgery and I think it's time to take a break, don't you? We will return to Philly in a few months for an expansion in the clinic. But for now we just praise God for his goodness and healing.
Friday, November 18, 2016
Our plan is to fly to Atlanta this evening and spend the night there. It's about 2 hour flight. Pray for comfort and her pain as we travel. It won't be easy, but getting out of the hospital I think will help her mentally also.
Thank you for praying us through this!
Thursday, November 17, 2016
She'll probably kill me one day for this pic but her eyes have really been itchy and bothersome so she has had ice cold wash clothes on her eyes much of the time and this is the first time she's had a shirt on the whole time. Along with several heating pads, her nurse and I joked that she looked like she's having a day at the spa.
Emily, our Samford nurse is back today. This is such a divine intervention and small world. Her best friend was one of our babysitters and she grew up going to The same church in Atlanta that my sister and her family go to. Been so wonderful to have her taking care of MG.
This pain reminds me of the hip pain after getting her cast off, which of course we never wanted to go back to. She has been through so much pain in her little life and yet once she gets through it, on the other side she is full of joy.
Thanks for your continued prayers.
"So also you have sorrow now, but I will see you again, and your hearts will rejoice, and no one will take your joy from you." John 22:16
Wednesday, November 16, 2016
MG is still battling lots of pain. She has been able to sleep some but when she's awake she's hurting a lot. So we haven't quite gotten over the hump. We are so used to her bouncing back fast after expansions and so this one was a lot for her little body.
It will take time I know. In the hospital time is so warped-one hour seems like 2 days.
Thanks for your continued prayers!
On a side note, our nurse today is from Samford and when she heard us talk she asked where we were from :) she just graduated and has always wanted to work at CHOP. She's so sweet and calls MG "Mary Graham" instead of just Mary (in a philly accent). Been fun getting to know her :)
Tuesday, November 15, 2016
We are wiped, and she's super needy, but wanted to send quick update. It's been a rough day for MG. Pain seems so be a little more controlled as we found some different meds to try. She's still on oxygen which she hates and says "my magic rods hurt." Just trying to make her comfortable enough to sleep. The first 24 hours are always bad, and I know it will take time after all she had done. Praying for peace and comfort only God can give.