Thursday, September 24, 2015

Back to life


I started this update after we got home, but then Mary Graham got the stomach bug last week, throwing up all night and running fever, so it took her several days to recover from that and I'm always in a fog when I get home from surgery trips, so it's taken me a little longer to get back in the swing of our normal life.

MG is doing really well now and is back in school. Her pain was so minimal from this surgery, which was exactly what we had prayed. She started back PT today and she is still working hard to stretch and strengthen her hip. Thanks so much for all your prayers-it's awesome to see God in all the details. 

I spoke of MGs fears and they were really apparent this trip. But her anesthesiologist this time was amazing. The hard thing with Mary Graham is that because she has a muscle disease she can't get the normal drug in a mask that puts you to sleep, it would be risky for a malignant hyperthermia reaction which is very serious. But this makes her much more aware of everything in the OR and remember the nurses and doctors and I have been back with her a couple times when they put her to sleep and it's hard to watch. I asked her what scared her the most and she said, "the nurses and doctors with their masks on looking over me when I lay down."
Instead they have to use laughing gas to help her relax before the IV. This doctor came up with a better plan for MG in the OR and so things went a little more smoothly this time. And she talked about getting a child life specialist to walk MG through the process that is more child friendly next time around. She then told me she wrote everything down and gave me her cell phone number to call her before the next surgery and she would be there. What a wonderful and compassionate doctor....I was so thankful for this anesthesiologist and her compassion towards MG. If this was not God's grace I don't know what is. 

She doesn't need another expansion for about 5 months and we are thankful this one is over and ask for prayers against infection. Also, for her hip to continue to heal and no more surgery.

She got some new "doctor" supplies at the hospital for her doctor kit. 

Thanks again for your faithfulness!





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