We left around 10:30 and just had back to back appointments and never really had a break until 3:30. Mary Graham did amazing and CHOP is so efficient. I've decided it's the most wonderful place you hope you never have to take your child :)
Our anesthesia team is well aware now of how anxious and upset MG gets in the operating room. She can't have the gas in the mask like typical children and adults so she is fully awake and is scared of the "mask people." But on her last visit here, the anesthesiologist was amazing (gave me her card and cell phone number) and we have a better plan this time. She will get more Versaid (silly juice) before they take her back to the OR and the anesthesiologist that will be with her tracked us down today on my cell phone to come meet us and MG so that may help her be more comfortable. She was about to catch the train back home but stayed to meet us-I'm amazed at how above and beyond they will go. And the child life specialist came by and played with Mary Graham and talked about her fears and is meeting us in preop tomorrow. So, we are feeling very well taken care of and thankful for these amazing people.
After seeing anesthesia and doing bloodwork, we went to ortho. Dr. Campbell has a new parter, Dr. Cahill, who is very experienced with veptrs and plans to take over when Dr. Campbell retires, whenever that may be. So Dr. Cahill is doing the expansion tomorrow. We really like him and we actually discussed the possibility of Magic rods (these are magnetic rods). When kids get these magic rods they have expansions in the office with a magnet that expands them through their back. So that means no incisions or surgeries for expansions at all. They are newer in the last few years and so they are not without complications. But it is definitely something to think about and pray about. I don't even know what made me ask Dr. Cahill about them, but I'm so glad I did and he actually did the very first magnetic rod implants. So we will see where God decides to take us on this.
Our day ended with us running into Josie. We met this sweet little girl about a year and half ago and the girls played at the hospital. Tonight we saw them at dinner and sat and visited with them. Josie is 7 years old and had her expansion yesterday and was up and had fun coloring with MG. it's so great to connect with these other families.
We are tired, but thankful for your prayers and these unexpected blessings today. We have to be at the hospital at 11:30, surgery probably not until 1:30, so it will be a long day and no eating after midnight. Since Mary Graham is getting older, she's not usually going to be first case anymore.
Please pray for our long morning until the surgery and that the surgery, anesthesia and recovery go well. Can not thank those of you praying enough-it carries us.
Will update tomorrow!
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