This is Henry, he is two years old and had his VEPTR rods inserted on November 1st....he got a massive infection similar to MG's, but his was much larger and he had emergency surgery last Sunday to clean out the infection and start on antibiotics and was in the ICU. He had been stable but today he crashed two times and passed away this afternoon. Carla, his mom and I got to meet while at CHOP just a few weeks ago and we had become good friends via email, she is a Christian and we bonded immediately with our babies going through similar things...I also got to meet sweet Henry, who was adopted from Ukraine last year. We have a very tight, supportive veptr family group and everyone is in shock and heartbroken for them. He is resting in the arms of Jesus now and his family loves the Lord. Please pray for his family.
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