Monday, September 12, 2011

Details and Beauty

"He is before all things, and in Him all things hold together." Colossians 1:17

We met with the orthopedist again this week to discuss the casting procedure. He gave us more details and showed us a picture of an 18 month old with a body cast (not fun to see, but we know this is the next best step). I am confident that this is where we need to be with Mary Graham. I had reached out to another doctor in Boston, sent him all of her xrays and he wrote me an email (and he didn't have to do any of this) saying he thought we were "on the right path" for her right now. God gave me peace through these words because I have so often prayed that our path would be clear.

The cast will go up to her chin, around her body and possible around one leg. She will wear it for 6 weeks and then have xrays done to see if it has helped correct her scoliosis, which is about at a 48 degree curve. Then they will probably leave it on for another 6 weeks, possibly take it off after that and maybe put another on if it's helping or talk about bracing. So a lot of "what ifs" "possiblys" and "maybes." We asked "what if it doesn't help the curve?" and he said surgery to fuse some bones may be the only option. So, we ask that you please pray for the cast to help in correcting her curve despite the difficulty with her back being rigid and tight. We know God can move in mighty ways.

The verse above is so comforting these days when I don't seem to have it all together-at all. He does and is holding it all together. The doctor spoke of Mary Graham's condition being rare, but I know it is not "rare" to God, he knows her fully well. Often I feel consummed......just wanting my mind to rest from thinking about my circumstances with MG. These are the circumstances that God wants us in and it only keeps me running back to Him. Lately I am so struck by many suffering around me, but able to see God's hand weaving a beautiful tapestry. To see life through the lens of Christ is to see this ugly world made beautiful. And I am beginning to see how beautiful she is, more than just her sweet smile and big blue eyes, and how I wouldn't change the way he made her for anything. God is using this tiny baby to change lives and point them, especially me, to Jesus....and that is true beauty.

We are so grateful for your prayers. Please continue to pray for healing for Mary Graham and for God to be glorified through her life and ours.

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