Home and Grace

MG riding the horse at Ronald McDonald House (pre-surgery)

Well, we made it home today after being discharged from the hospital last night. I do not think I could have asked for a better trip/surgery for us and MG. God truly blessed us every corner we turned and abundantly answered so many prayers. Thank you for praying us through this one. To have an experience like this in the midst of the long journey we have ahead of us with MG is actually encouraging. These trips can be tiresome, but we are so thankful for a treatment for Mary Graham's scoliosis and just ask you to continue to pray for no complications with her spine and good improvements. She is doing amazing, not too much pain today at all, mostly just when I move her. And of course, her sweet little spirit returned once we got out of the hospital-she still has some major fears. We will return again to CHOP in November for another expansion of her rods.

Also, a prayer request for some of you prayer warriors.....we met another sweet veptr family with a 5 year old daughter named Grace. She had surgery after MG on Tuesday to have her rods replaced. However, they found a mass behind one of her rods and are unsure of what it is at this point, could be a major infection. So, Dr. Campbell did the surgery, but she will be in the ICU for a while and her family is waiting results from the mass. Please pray for them and especially little Grace.

My eyes are always opened wider and wider every time we go to CHOP. But we trust in God's perfect plan for each of these children.

Please pray for us over the next month, we are going to start specific genetic testing for Mary Graham's muscular dystrophy, pray for peace and patience as we wait.

I had a hymn on my mind the whole time while we were gone, here are the words....

We rest on Thee, our Shield and our Defender.
We go not forth alone against the foe;
Strong in Thy strength, safe in Thy keeping tender,
We rest on Thee, and in Thy Name we go

We are so blessed to have you all praying for us and MG, thank you so much. Even though we travel far away for these surgeries, we are never alone.