Making progress

"You, O Lord, keep my lamp burning, my God turns my darkness into light." Psalm 18:28

Wanted to share some pics around our house this week....we are very glad to be home....and home is just about the only place I have been :) But that's ok, I'll break out one of these days.  We have had lots of smiles in between the craziness...Lucy has been sick, our dog had a stroke, MG is still throwing up (often after she has had a lot to eat and coughs too much), and Loftin has been having dreams that I'm leaving and not coming back...bless him. But today we are all turning a corner has been the best day yet...MG is getting better each day, she is still requiring breathing treatments and oxygen around the clock (although we are slowly going down on the amount she needs), and overall she just feels better. She is playing and eating much better, but gets very tired and is napping a lot during the day. This RSV stuff is no joke and anytime these unplanned hospital stays come, it affects our whole family. I am most thankful for God's abounding grace during these times and I know there are brighter days ahead.

God teaches us so much through our struggles with MG.....he also shows me how blessed we truly are. You gain lots of perspective when surrounded by this medical world we now live in... knowing that though this is really hard at times, it could be worse. God tells us to never be surprised by our sufferings. That verse above I read the other day and love that it says he "keeps our lamp burning." I would have blown mine out a while ago....but thankfully He never stops.

We praise Him for healing MG thus far and ask for more prayers of continued healing and protection from other illnesses and for still no rod infection to arise. Her expansion surgery has been moved to Feb. 26th at CHOP, so her lungs can completely heal from the RSV and she is also scheduled get a G-tube then. We are not super excited about that, but she needs to gain weight and have more reserve when she gets sick and be stronger with all the surgeries in her future. So that's the plan....stayed tuned. We are always so grateful for your faithfulness to pray.