He is the kind of doctor that I could text in the middle of the night, been a liaison between CHOP and here, always had great compassion for mg and our family and told me yesterday though tears that when we first brought MG to him at 4 months old, he worried about her a lot and that things looked so grim. But he said she has done amazing and he doesn't worry about her in that way anymore. She is a miracle.
Those were just the words I needed to hear yesterday-she has come so far and this season is hard, but there will be brighter days. She had X-rays and her lungs have never looked better either. This is so encouraging.
She smiled and laughed with him and asked why we were crying ;) He will be missed, I'm so thankful for God putting him in our lives at just the right time.
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